CharitiesGlobal

The New Zealand Lysosomal Storage Diseases Trust

Lower Hutt, Petone, New ZealandNZCC24962Individual and family services
No longer registeredThis organisation was removed from the public charity register in March 2021. Its details are kept here for reference.
LocationLower Hutt, Petone, New Zealand
RegisterNZCC24962
Categories2 areas of focus
Last synced04 Sept 2026

To improve contacts information and support among people affected by Lysosomal Storage Diseases, and their families within New Zealand, To support and advocate for accelerated research into the causes and treatments of Lysosomal storage diseases, and or improvements to the clinic

About The New Zealand Lysosomal Storage Diseases Trust

To improve contacts information and support among people affected by Lysosomal Storage Diseases, and their families within New Zealand, To support and advocate for accelerated research into the causes and treatments of Lysosomal storage diseases, and or improvements to the clinical care of affected people. To build links with overseas families, support groups to support knowledge about theses diseases and advance the objectives of the trust. To promote education of families, clinicians and others involved in the care of affected people and their families. To support and advocate for the establishment of medical testing screening, other specialist services.

Areas of focus

Cause
Individual and family services

Registration & legal

Organisation nameThe New Zealand Lysosomal Storage Diseases Trust
Registration numberNZCC24962
Registration statusDeregistered
CountryNew Zealand
City / RegionLower Hutt, Petone

Data from the official register — Charities Services, last synced 04 Sept 2026.