Xp Support GroupRemoved January 2023
No longer registeredThis organisation was removed from the public charity register in January 2023. Its details are kept here for reference.
Supporting families with Xeroderma Pigmentosum or UV or light sensitivities, by exchange of information, and by giving of grants for UV protective equipment. We fund travel and accommodation expenses to attend the National XP Service at the Rare Disease Centre at St Thomas' Hospi
About Xp Support Group
Supporting families with Xeroderma Pigmentosum or UV or light sensitivities, by exchange of information, and by giving of grants for UV protective equipment. We fund travel and accommodation expenses to attend the National XP Service at the Rare Disease Centre at St Thomas' Hospital, London.We run an annual night time camp called the Owl Patrol.Issue a Newsletter 2 times a year
Areas of focus
Cause