The 1p36 Family TrustRegistered
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Claim your profile →Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educatio
About The 1p36 Family Trust
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Areas of focus
Cause