ROHHAD AssociationRegistered

The organisations purposes are: The Saving of Lives by funding and promoting research that will lead to new understanding and treatments, and brings us closer to a cure for the rare medical condition ROHHAD The advancement of health by funding and promoting research that will lead to new understanding and treatments, and brings us closer to a cure for the rare medical condition ROHHAD. The relief of those in need by providing support for those suffering with ROHHAD, their carers, families and siblings. The advancement of Education by funding and promoting research that will lead to new understanding and treatments and brings us closer to finding a cure for the rare medical condition ROHHAD. The ROHHAD association will achieve the 4 purposes detailed above by embarking on an extensive raising awareness campaign so that the needs of the children(and rarely adults) with ROHHAD and everyone who cares for them are recognised by wider society. The ROHHAD association will also embark on an extensive fundraising campaign.