Proteus Family Network UKRemoved July 2023
No longer registeredThis organisation was removed from the public charity register in July 2023. Its details are kept here for reference.
Support line for families who have members with overgrowth conditions, specifically Proteus and Klippel Trenaunay syndrome. Family weekends, information leaflets, Newsletters, Medical Board Meetings to establish improved clinical experience for families and establish centre of e
About Proteus Family Network UK
Support line for families who have members with overgrowth conditions, specifically Proteus and Klippel Trenaunay syndrome. Family weekends, information leaflets, Newsletters, Medical Board Meetings to establish improved clinical experience for families and establish centre of expertise for adults - there has been none in the UK to date, We operate worldwide.
Areas of focus
Cause