PC Project Europe / Pachyonychia Congenita Project / PC ProjectRegistered

The organisation's purposes are: To advance education and health by: (a) promoting the study of pachyonychia congenita and improving the standard of knowledge of the means of prevention, diagnosis and treatment of pachyonychia congenita. (b) initiating, encouraging, supporting (whether financially or otherwise) and carrying out research and investigations into pachyonychia congenita and the treatment or cure of pachyonychia congenita and related disorders. (c) providing access to genetic testing and registration in respect of pachyonychia congenita and other rare genetic diseases. (d) organising and encouraging a community of professionals including physicians and scientists to collaborate in efforts to find effective treatments for pachyonychia congenita and related disorders. To relieve those in need due to ill health through the provision of care, support and practical assistance to sufferers of pachyonychia congenita and related disorders and assisting sufferers of pachyonychia congenita and related disorders to live better, more fulfilled lives through the facilitation of a range of initiatives including those directed towards social inclusion.