Myotonic Dystrophy Support GroupRemoved November 2011
No longer registeredThis organisation was removed from the public charity register in November 2011. Its details are kept here for reference.
The Myotonic Dystrophy Support Group have a mailing list of 1800 families. An annual conference is held, and meetings in 6 different areas of the UK. We have a helpline, website, and provide literature, written by medical professionals for families. The national office is manned
About Myotonic Dystrophy Support Group
The Myotonic Dystrophy Support Group have a mailing list of 1800 families. An annual conference is held, and meetings in 6 different areas of the UK. We have a helpline, website, and provide literature, written by medical professionals for families. The national office is manned 12 hrs a week.
Areas of focus
Cause