Marfan Association UKRemoved April 2020
No longer registeredThis organisation was removed from the public charity register in April 2020. Its details are kept here for reference.
We continue our vital roles offering support to patients with Marfan Syndrome, their family members and their individual medical specialists holding meetings updating them on the current situation. We sponsor and undertake research projects, providing updated text, speaking at me
About Marfan Association UK
We continue our vital roles offering support to patients with Marfan Syndrome, their family members and their individual medical specialists holding meetings updating them on the current situation. We sponsor and undertake research projects, providing updated text, speaking at medical seminars, creating life-saving awareness and assisting early diagnosis and good individual medical care plans.
Areas of focus
Cause