Emily Heather Appeal Fund for Sandhoffs' DiseaseRegistered
Is this your organisation? Claim Emily Heather Appeal Fund for Sandhoffs' Disease to tell your own story, add your contact details and give supporters a way to donate directly.
Claim your profile →Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
About Emily Heather Appeal Fund for Sandhoffs' Disease
Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
Areas of focus
Cause