Bardet - Biedl Syndrome UKRemoved December 2020
No longer registeredThis organisation was removed from the public charity register in December 2020. Its details are kept here for reference.
Annual family conference, including children's activities throughout the weekend. Plus professional speakers, and a chance for families and those with bbs to gain information and support throughout the weekend and the year.fundraising throughtout the year.supporting families and
About Bardet - Biedl Syndrome UK
Annual family conference, including children's activities throughout the weekend. Plus professional speakers, and a chance for families and those with bbs to gain information and support throughout the weekend and the year.fundraising throughtout the year.supporting families and those with bbs with an up to date web page, plus information leaflets, newletters, and helpline.
Areas of focus
Cause