Action for XP

4 The organisation is established for charitable purposes only, and in particular, the objects are: 4.1 To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. 4.2 To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. 4.3 To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. 4.4 To promote education and awareness both within the XP community and externally within the professional community and general population. 4.5 The promotion of inclusivity, diversity, equality, and awareness, operationally and across our activities