Cholangio-Hepatocellular Carcinoma Canada

1st year of operations all activities described in the new section. 1) we provide family assistance to individuals and families when diagnosed with cholangiocarcinoma (cca) and / or hepatocellular carcinoma (hcc). - we started hosting patient support groups on the third tuesday of every month beginning in june. 2) we developed a website to deliver patient advocacy programs provide educational materials and share knowledge of cca & hcc. - we hosted a webinar on biomarkers and posted it to the website. - we posted the awareness days for liver and cholangiocarcinoma on the website. 3) we emailed to a lot of facilities in canada and were able to have them light up green for our awareness days. Feb 15 2024 april 19 2024 june 13 2024 and july 28 2024. 4) we started a quarterly newsletter and the first issue was sent out on june 2024. 5) we promote the research efforts of other organizations researching cca & hcc. 6) we participated in a virtual conference on rare cancers that ccran held in june. 7) we advocate for rare disease policies and practices to secure better care for cca & hcc patirents. - we did a letter campaign to all health ministers advocating for coverage of pemazyre which was approved by health canada. We participated in a patient interview and met with alberta's health minister.