CedsaRegistered

The Canadian Ectodermal Dysplasias Syndromes Association (CEDSA) will act as the national information and resource centre on provincial and territorial funding programs medical expertise ongoing research and support groups. Working with established ectodermal dysplasias associations around the world CEDSA will support research towards a cure raise awareness of EDS and connect children youth family and friends seeking support and a place to share information. No one had time or energy to carry on the necessary fundraising or to carry out the desired activities