Rare Voices Australia LtdRegistered

Rare Voices Australia (RVA) is the national peak organisation advocating for Australians living with rare disease. We provide a strong, common voice to advocate for policy and systems that work for people living with rare disease. Throughout the year RVA has worked with key stakeholders including rare disease advocates and organisations, peak bodies, governments, researchers, clinicians and industry to advocate for and develop effective national rare disease policy for the best health and wellbeing outcomes for Australians living with rare disease.