Rare Cancers Australia LtdRegistered
1. Operation of a digital ( audio/visual) based Patient Support Program that assists rare cancer patients identify resources such as: 1. Information on their specific rare cancer 2. Centres of clinical expertise in their specific cancer 3. Sources of financial support 4. Relevant
About Rare Cancers Australia Ltd
1. Operation of a digital ( audio/visual) based Patient Support Program that assists rare cancer patients identify resources such as: 1. Information on their specific rare cancer 2. Centres of clinical expertise in their specific cancer 3. Sources of financial support 4. Relevant clinical trials 5. Treatment access schemes available via the pharmaceutical industry 6. Provide timely and specific information on potentially high impact other disease areas ( e.g. Health) 2. Development of a web portal that provides the above information through the RCA website 3. Continuous representation and advocacy to Federal and State Governments to improve research and treatment for Australians living with rare cancers. 4. Partnerships with major research institutions to advance research into rare cancers in Australia 5. Building and supporting global alliances of like minded organisations to advance the cause of all cancer patients. 6. Provides crucial support and advocacy for individuals affected by rare cancers, assisting them to navigate specialised care and access to treatments. 7. Fosters a supportive community, empowering patients and their families with resources and information to navigate their unique cancer journey.
Areas of focus