Porphyria Association IncRegistered

We have continued to offer information and support services to the porphyria community including through information on the charity's website to help guide and direct patients to the information and referrals they may need, and providing support through phone counselling. We have continued to be involved in the development of A research study exploring the diagnosis of acute porphyria patients in emergency departments, as well as continuing our focus on working with healthcare teams and the pharmaceutical industry to advocate for the access of new treatment options for both acute and cutaneous porphyria.