FSHD Global Research Foundation LimitedRegistered

We funded medical research to advance treatments for Facioscapulohumeral Dystrophy. We provided saliva research testing to individuals and families to help them understand their likely FSHD status. We provided patient and medical advocacy services to establish clincial trial infrastructure and coordinate Australia's inclusion into a global clinical trial network. We established new muscle measurement technology within Australia to set a new standard for muscle measurement within clinical application and for clincial trials.