CHARGE Syndrome Australia LtdRegistered

Connecting families with information, experts and other families to help make the CHARGE Syndrome journey simpler and easier. Held national conference (2325 Aug 2024) attended by 260 delegates (95 parents, 76 professionals, 27 Adults with CHARGE, 21 Children with CHARGE, 22 Siblings, 6 Grandparents, 13 Students). Provided Warrior Welcome packs to new families. Raised awareness through the inaugural CHARGE Syndrome Awareness Day (8/8/24) and yarnbombing event for International Deafblind Awareness Week. Provided outreach support across Australasia to families, carers and professionals supporting people with CHARGE.