Australian X and Y Spectrum Support Limited
Provided online peer support for individuals and the community. We have held two casual catch ups for families provision of peer support. We have also provided online peer support training for any members that would like to develop their peer support skills. Our online peer supp
About Australian X and Y Spectrum Support Limited
Provided online peer support for individuals and the community. We have held two casual catch ups for families provision of peer support. We have also provided online peer support training for any members that would like to develop their peer support skills. Our online peer support includes a private Facebook group, online chats, emails, group chats and oneonone conversations. We also provide a helpline phone support. AXYS publishes a regular Newsletter for AXYS members sharing AXYS information, education and support. AXYS has held webinars with specialists such as genetic counsellors and reproductive specialists for members. Our board has engaged with a leading Australian university Occupational Therapy Department through a Consumer Advisory Group, where we are codesigning coursework to offer scaffolded opportunities for third and fourthyear students to experience clinical complexity of our members diagnoses prior to graduation. AXYS have collaborated with tertiary research organisations both within Australia and internationally to promote better health and wellbeing outcomes for our community. These projects have been presented at science and clinical conferences, and published in peer reviewed journals. Including the 2024 iDSD Symposium in Stockholm, where members met with other peer led organisations. Advocacy and education our board have presented to university students (genetic counsellors) to promote greater understanding and awareness. Our organisation advocated to health groups, government agencies and tertiary education institutions ACT govt and VIC govt in particular. AXYS has joined with national consortium. We have reviewed our website, provided NDIS information relating to our members, updated our goals and mission statement. AXYS have partnered with a leading international awareness partner: My Chromodiversity. We have invested in branding, logo, mascot and merchandise development.
Areas of focus
Registration
AU79631791216