Australian Sickle Cell Advocacy Inc

Australian Sickle Cell Advocacy Inc. (ASCA) is a notforprofit organization dedicated to supporting individuals affected by sickle cell disease (SCD) in Australia. Established in 2014 and formally registered in October 2018, ASCA operates nationwide, with its head office based in Melbourne and representatives across various states and territories. Mission and Activities: Awareness and Education: ASCA strives to raise public and medical community awareness about SCD, emphasizing the importance of early diagnosis and effective management strategies. Advocacy: The organization actively lobbies for policies that enhance the quality of life for those affected by SCD, including advocating for the inclusion of SCD in newborn screening programs across Australia. Support Services: ASCA offers resources and support networks for individuals and families dealing with SCD, facilitating peertopeer connections and providing information on treatment options. Research and Healthcare Collaboration: Committed to advancing research, ASCA collaborates with healthcare providers and policymakers to ensure access to the latest medical care and treatment for individuals with SCD