Right now this page shows what the charity register holds about FOP FRIENDS. Claiming it lets you tell your own story — what you do, who you help, how to reach you and how to give — so someone who finds you here sees your organisation as you'd want it seen.
Next, we'll email a 6-digit code to your charity's registered address to confirm you represent FOP FRIENDS. Type it in here, and filling in your profile takes about two minutes.
Curious what a claimed profile looks like? See an example.
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events,
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Areas of focus