Right now this page shows what the charity register holds about STURGE WEBER UK. Claiming it lets you tell your own story — what you do, who you help, how to reach you and how to give — so someone who finds you here sees your organisation as you'd want it seen.
Next, we'll email a 6-digit code to your charity's registered address to confirm you represent STURGE WEBER UK. Type it in here, and filling in your profile takes about two minutes.
Curious what a claimed profile looks like? See an example.
The Charity exists to promote the interests of people affected by Sturge Weber syndrome and to engage in any charitable activities which may assist their wellbeing and to protect and preserve the health of their families, friends and helpers, by providing information and support,
The Charity exists to promote the interests of people affected by Sturge Weber syndrome and to engage in any charitable activities which may assist their wellbeing and to protect and preserve the health of their families, friends and helpers, by providing information and support, promoting research into Sturge Weber syndrome and raising public and professional awareness of the syndrome.
Areas of focus