Right now this page shows what the charity register holds about FD-UK. Claiming it lets you tell your own story — what you do, who you help, how to reach you and how to give — so someone who finds you here sees your organisation as you'd want it seen.
Next, we'll email a 6-digit code to your charity's registered address to confirm you represent FD-UK. Type it in here, and filling in your profile takes about two minutes.
Curious what a claimed profile looks like? See an example.
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update suffe
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
Areas of focus