Right now this page shows what the charity register holds about THE SCHINZEL-GIEDION SYNDROME FOUNDATION. Claiming it lets you tell your own story — what you do, who you help, how to reach you and how to give — so someone who finds you here sees your organisation as you'd want it seen.
Next, we'll email a 6-digit code to your charity's registered address to confirm you represent THE SCHINZEL-GIEDION SYNDROME FOUNDATION. Type it in here, and filling in your profile takes about two minutes.
Curious what a claimed profile looks like? See an example.
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
Areas of focus