Right now this page shows what the charity register holds about THE PSEUDOXANTHOMA ELASTICUM SUPPORT GROUP (PIXIE). Claiming it lets you tell your own story — what you do, who you help, how to reach you and how to give — so someone who finds you here sees your organisation as you'd want it seen.
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Help, encourage and assist those with PXE and their family members.Heighten the awareness of PXE amongst the medical community, support services and the general public.Link members with each other for mutual support and exchange of ideas.Provide information on the various aspects
Help, encourage and assist those with PXE and their family members.Heighten the awareness of PXE amongst the medical community, support services and the general public.Link members with each other for mutual support and exchange of ideas.Provide information on the various aspects of PXE.Hold meetings to which all members, their families and friends are invited.
Areas of focus