Right now this page shows what the charity register holds about POMPE SUPPORT NETWORK. Claiming it lets you tell your own story — what you do, who you help, how to reach you and how to give — so someone who finds you here sees your organisation as you'd want it seen.
Next, we'll email a 6-digit code to your charity's registered address to confirm you represent POMPE SUPPORT NETWORK. Type it in here, and filling in your profile takes about two minutes.
Curious what a claimed profile looks like? See an example.
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical dev
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
Areas of focus