Right now this page shows what the charity register holds about CdLS Foundation UK & Ireland. Claiming it lets you tell your own story — what you do, who you help, how to reach you and how to give — so someone who finds you here sees your organisation as you'd want it seen.
Next, we'll email a verification link to your charity's registered address to confirm you represent CdLS Foundation UK & Ireland. Once you've clicked it, filling in your profile takes about two minutes.
Curious what a claimed profile looks like? See an example.
Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.
Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.
Areas of focus