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We organise conferences for members and medical/research specialists to share knowledge and experience. We assist families in attending other support opportunities and taking part in CS research programmes. We organise group days out for families to enjoy precious time together.
We organise conferences for members and medical/research specialists to share knowledge and experience. We assist families in attending other support opportunities and taking part in CS research programmes. We organise group days out for families to enjoy precious time together. We provide respite care and a siblings club. We support families at our dedicated clinic at Thomas and Guys Hospital.
Areas of focus